Being proactive helps Krysti beat the odds of inflammatory breast cancer

Being proactive helps Krysti beat the odds of inflammatory breast cancer

The longer I’m on this cancer journey, the more I’ve learned how important it is to be an informed, proactive patient. Thank God I’ve met so many inspiring people who have helped pave the path for me. My friend Krysti Hughett is living proof of the power of doing your research and advocating for yourself. She has shared so much valuable information with me about clinical trials and cancer freebies like Camp Kesem, a free overnight camp for kids whose parents have/had cancer (our daughters have been cabin mates for seven summers now). So I was thrilled when she agreed to share her amazing story in my book, Miracle Survivors: Beating the Odds of Incurable Cancer. In 2004 at age 44, Krysti Hughett learned she had inflammatory breast cancer (IBC), a...

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American Cancer Society and Extended Stay team up to help cancer patients like me

American Cancer Society and Extended Stay team up to help cancer patients like me

I just love when serendipity happens. As a blogger, I get all kinds of solicitations — from people wanting me to promote everything from their books and personal care products to services and charities for cancer survivors. To keep the integrity of this blog intact, I’m usually unable to accommodate requests if they’re trying to sell products. But I love to pass along free services and resources for cancer patients/survivors. This week, I received a very timely correspondence from the PR agency for Extended Stay America hotels. The press release reads: Extended Stay America — the largest owner-operated hotel brand in the U.S., and the American Cancer Society (ACS) — the largest voluntary health organization in the nation —...

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Book signing launches hope

Book signing launches hope

Tuesday night I birthed my baby. No, not a real baby; I’m much too old (and devoid of reproductive organs, thanks to a hysterectomy) to do that! I had the pleasure and honor of publicly unveiling my book, Miracle Survivors: Beating the Odds of Incurable Cancer at my book launch/signing party. Although I had been planning it for a long time, I really didn’t have much time to think about it until a few days before the event. You’ll understand what I mean if you’ve been keeping up with my ever-changing journey to get on my chosen clinical trial. (More about that later). It was a wonderful evening surrounded by friends and community members. What I didn’t expect is how much inspiration I would draw from the event. I got up and briefly...

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New look, new book, new treatment

New look, new book, new treatment

New look The first thing you might notice is Miracle Survivors has a whole new look! I think it’s fresher, easier to navigate, and overall, an improved design. We’ve cleaned up some of the items you see in the right sidebar and moved the page tabs to the other side. You don’t have to scroll through a whole story to get to the next one or through a long list of categories (thanks to a new menu pull-down feature). I want to thank my friend and web designer Jason Bayer from MOBA Interactive for all his great work! New book Which brings me to my next piece of exciting news! Yesterday I received my shipment of my new book, Miracle Survivors: Beating the Odds of Incurable Cancer! I’ve heard from many of you who pre-ordered yours from Amazon that...

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Here we go again

Here we go again

Five words: Cancer sucks. Love is great. As I wrote last week, I had some major scanxiety leading up to my PET scan. I knew something was wrong. Unfortunately, I was right. There was progression, which means my treatment, which I had been on a record time of 20 months, stopped working. It was something I knew would happen eventually. Throughout my almost seven years of living with stage IV breast cancer, I’ve been on 12 different treatments. Somehow, the sneaky bastards/aka cancer cells find a way to survive and flex their might by growing. Funny how my mind works. This is inconvenient timing. I’m on the cusp of releasing my new book, Miracle Survivors, which will available on Nov. 11. I have a big launch party planned. I’m traveling to LA for a...

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Scan time once again

Scan time once again

I’ve been spending time trying to spread awareness about metastatic breast cancer this month. I feel like I’m boring and annoying people with it. But I still realize there is work to be done.  Some people do  not realize that I (and most everyone with stage IV cancer of any type) go through the ritual of regular scans. Yes, every three or four months, I lie in a scanner, trying not to itch or think about when my treatment stops working and  if this is the end of the line. I”ve lost count of how many scans I’ve received in almost seven years, but I think I deserve a Frequent PET Scan card. Perhaps they could give out free cups or coffee or a nice breakfast after all that fasting. A free movie while you’re waiting for the toxic,...

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Miracle Survivor Dakota Neal: beating the odds of a rare sarcoma

Miracle Survivor Dakota Neal: beating the odds of a rare sarcoma

I’m getting very excited about the release of new book, Miracle Survivors: Beating the Odds of Incurable Cancer, due out Nov. 11 by Skyhorse Publishing!  It was a labor of love and very healing for me to interview and share the stories of extraordinary people who show that statistics are just numbers. I wrote this book and my previous book, From Incurable to Incredible, out of my own experience as a stage IV breast cancer survivor. I wanted to find hope that I could live well with, if not beat, cancer and knew that sharing people’s experiences was the best way to illustrate that all things are possible. This week, I’ll start a series of excerpts of stories from book. Today we meet Dakota Neal, who was diagnosed  in 2005 with leiomyosarcoma, a...

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