Liver biopsy done, now we wait

Feeling the love

Feeling the love

On Tuesday, we left before dawn to go to Indianapolis for my liver biopsy. The tissue will be used for genomic sequencing/analyzing for the MATCH trial (click on this link for more information). My oncologist told me it will take 10 days for results to come in.

I was reassured by a coincidental connection to the trial. One of my dearest and long-term friends, Jami Elliott, actually works for the company that manufacturers the diagnostic equipment used for the genomic sequencing. He knows a lot about the process and assured me that the process is state of the art and my tissue will be thoroughly and accurately analyzed.

The actual biopsy was not too bad. I was anticipating a long recovery, but three days later, I am feeling better and less sore. I did have to lay flat for four hours after the procedure, which caused some acid reflux issues, but I resolved them by eating a little bit and taking Pepsid.

I have been overwhelmed by the outpouring of support I have received from friends and family. Cards, gifts, flowers, food, visits have buoyed me up. I am truly grateful. Mike has taken me on many trips to the grocery store to make sure I have some different things to eat. I’m still on this liquid/mushy diet and food has become a bit boring to me. On the plus-side I’ve lost about 10 pounds, which I needed to anyway.We just received a shipment of meals from my support group, Pink Ribbon Girls, which should keep Mike and Chrissy well-fed.

Mike has also been a great help in getting me out for walks, no matter how slow they are. Our big concern is that I’ll get another bowel obstruction, and movement seems to help.

Chrissy, our  daughter, has been busy with school and activities, but she is my greatest pick-me-up with her cheery disposition and unconditional love. I’ve been helping her study for anatomy and physiology and actually learning a thing or two, even though I have first-hand knowledge of many of the terms thanks to stupid cancer. I’m looking forward to see her high school band perform and get to one of her tennis matches.

Another angel in my life is Bill Hughett, my friend Krysti’s widow. I feel like Krysti is living through him as he connects me with people in the know about clinical trials who helped Krysti. Her last words to me were to let everyone know how I’m doing on the trial I was on. I think she wanted Bill to help me even as she lay dying in the hospital. That is the kind of person Krysti was.

Today, I’m going to venture out and go to lunch with a couple of friends at a place known for their smoothies. I even have to be careful about drinking them as fiber is a no-no. I’ve found I have to take things a moment at a time.

Again thanks for your prayers and support.

 

5 Comments

  1. Linda Naylor
    Aug 30, 2015

    The richness of your authenticity continues to inspire, Tami. It’s a constant reminder of the beauty of each of our lives. Thank you. I send you love as I recognize your wholeness.

  2. tamilb
    Aug 29, 2015

    Thanks Barbara/aka Word Streak champion! Love to you!

  3. tamilb
    Aug 29, 2015

    Great to hear from you Sandra and thanks for your support!

  4. Sandra burton
    Aug 29, 2015

    Hi,I have been reading your post. I look firward to reading each update. I admire your strength, will and zest for life. I love your support of family, friends and groups that you have around you. Your fan.

  5. Barbra Tugman
    Aug 29, 2015

    So beautifully written as always Tami. I am praying for fabulous results. You are always in my thoughts and prayers. Your family is so wonderful. A true blessing. You so inspire me. Staying strong and positive always and never ever giving up are my mantra too. Been so from day one. Thank you for sharing so beautifully as always. God bless.

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